Office of the Long-Term Care Patient Representative

Program Code

The Office of the Long-Term Care Patient Representative program code is 3900300.

Program Description

The Office of the Long-Term Care Patient Representative (OLTCPR) advocates for residents in skilled nursing and intermediate care facilities who lack the capacity to make medical decisions and have no legal surrogate. The Program supports the implementation of Health and Safety Code (HSC) section 1418.8 in approximately 1,192 skilled nursing and intermediate care facilities across California.

OLTCPR was created to strengthen protections for residents without decision-making capacity. Under HSC 1418.8, facilities must hold an IDT review before proceeding with certain medical interventions requiring informed consent, including but not limited to administering antipsychotic medications, modifying physician orders for life-sustaining treatment (POLST), do-not-resuscitate (DNR) orders, or transferring a resident to hospice care. The IDT must include the attending physician, registered nurse, other appropriate facility staff, and a patient representative.

A patient representative is a family member, friend, or other authorized individual who helps ensure that the resident’s known healthcare preferences, if known, or their best interests are considered during the IDT review process. If no suitable person is available, the facility must contact OLTCPR to assign a public patient representative (PPR). Facilities are responsible for notifying residents and patient representatives of IDT reviews, ensuring compliance with legal requirements, and submitting required data to the California Department of Aging.

Program Benefits

OLTCPR provides residents of skilled nursing and intermediate care facilities with no legal surrogate with advocacy and protection in medical decision-making. PPRs work closely with residents and facilities to protect and help ensure that medical interventions align with the resident’s healthcare preferences, if known, or best interests. By maintaining a presence in facilities, PPRs provide consistent support and foster trust with residents, helping them navigate complex healthcare decisions.

OLTCPR also benefits facility staff by providing guidance on the requirements under HSC 1418.8, including the role of patient representatives in IDTs. Program staff provide training and technical assistance to ensure high-quality representation for vulnerable residents.

Program Eligibility

Eligibility Criteria Eligibility Requirement
Age

No requirement

Income

No requirement

Other

A resident is eligible for OLTCPR services if they meet all of the following criteria:

  • Resides in a skilled nursing or intermediate care facility
  • A physician has determined the resident cannot provide informed consent
  • The facility has received a doctor’s order for a medical treatment or intervention requiring informed consent
  • There is no available legal surrogate, family member, or friend to represent the resident in medical decision-making

Program Funding

Funding Type Funding Information
Source

$4.1 million from State General Fund (GF)

Allocation Formula

Local contracts awarded based on Request for Proposals

Match Requirements

No requirement

Other

Not applicable

State Fiscal Year Cycle

July 1 – June 30

Program Statistics

Data Element SFY 2022-23
Total*
SFY 2023-24
Total
IDT reviews conducted with PPR 110 334
Unique residents who have had an IDT review with PPR 103 292
Emergency medical interventions authorized with PPR 24 73
Emergency interventions where IDT review team failed to meet within the time required 0 3

*Data for SFY 2022-2023 covers January 27 – June 30, 2023, due to program commencement on 1/27/2023.

Program Fact Sheets - Statewide

Program Fact Sheets - Local Level

Program Narratives